2025 Stanford Conference on Disability in Healthcare and Medicine | MSDCI and SMADIE
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Throughout this immersive presentation, Dr. Jamal-Eddine will integrate subversive spoken word poetry that delves into her lived experiences with ableism manifested as mistrust of disabled people with non-apparent disabilities and her lived experiences with ableism in healthcare/nursing education. Additionally, Dr. Jamal-Eddine will share some key findings from her qualitative descriptive research which investigates the use of spoken word poetry as a form of critical narrative pedagogy to educate nursing students about disability, ableism, and disability justice. Finally, this presentation will touch on the differences between (and needed synergies of) disability rights and disability justice, the importance of decentering whiteness in disability research and organizing, and the way politicization operates against certain disabled bodyminds.
Honors Nursing Student
University of Michigan School of Nursing
Tess Carichner is a senior nursing student at the University of Michigan School of Nursing. Having grown up in an interabled family, as well as experiencing disability herself, Tess has long been interested in disability culture and health equity. As she approaches graduation, Tess prepares to pursue the FNP, then PhD routes in hopes of providing anti-ableist primary care to the disability community and advancing research related to violence victimization prevention in the autistic population. Tess will be the first student to graduate with a Disability Studies minor from University of Michigan, an endeavor born from her initial research with the Digital Accessible Futures Lab (DAF). Within DAF, she has directed a student disability culture anthology called Accessing Disability Culture, and co-authored a conference award-winning zine: Notes From Your Autistic Nursing Student Sisters. In her free time, Tess runs Disability Justice @ Michigan, a group for students and community members committed to advancing disability justice principles in the areas of higher education and nursing practice.
Postdoctoral Research Associate
University of Illinois Chicago
Dr. Sabrina Ali Jamal-Eddine, PhD BSN RN (she/her) is an Arab disabled queer woman, health humanities nurse scientist, disability justice scholar-activist, and spoken word poet. Dr. Jamal-Eddine completed her PhD in Nursing and certificate in Disability Ethics at University of Illinois Chicago (UIC) where she explored the use of spoken word poetry as a form of critical narrative pedagogy to educate nursing students about disability, ableism, and disability justice. Dr. Jamal-Eddine is now a postdoctoral researcher in the Department of Disability and Human Development at UIC where her research seeks to dismantle ableism in nursing education and practice through anti-colonial pedagogic strategies and community-based interventions rooted in the lived experiences of multiply marginalized disabled people.
Dr. Jamal-Eddine has impacted her field through publishing a critical article entitled ‘Assets not burdens: Disabled students in nursing education’ in the International Journal of Nursing Studies, through founding and leading the grassroots ‘Disabled Nurse National Solidarity Collective,’ and through serving as a 2024-25 Emerge Disability Justice Fellow through Paul K. Longmore’s Institute on Disability. Dr. Jamal-Eddine’s long-term goal is to found an applied public-humanities / community-engaged healthcare equity center in a university that confronts healthcare inequity, violence, and oppression and promotes liberation, humanization, and belongingness for all marginalized patients, students, and practitioners.
